AISSG

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Orchidectomy (Gonadectomy)
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Information for Parents

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Informationen in Deutsch
Información en Español
Information en Français
Informazioni in Italiano
Informatie in het Nederlands
Informacje po Polsku
Information på Svenska
Információ Magyarul
Eestikeelne Informatsioon

Links to Other Sites
Glossary

How to Contact Us

Please read this introduction before using the contact information lower down on this page.

Who Can We Help?

We are here to assist people who have good reason to believe they, or a family member has AIS or a closely related biological intersex condition. We welcome contributions to our Personal Stories page, even if you are not seeking information/support or joining the group.

We are a peer support organisation run by just a few volunteers in their spare time (and currrently with no funding other than modest annual registration fees and literature income). We regret we cannot supply information to people with other gender-related issues or to students doing school/college projects. Please do not email us any large files/attachments unless agreed upon beforehand.

Joining a Group

This website is just the start. Some national groups (generally those with sufficient resources to hold group meetings) operate an annual membership/registration scheme within their country, although some groups are too small to do this at present. Enquirers are welcome to register as members of the UK group and/or order literature from us, even if they are outside the UK. We have a number of overseas members, some of whom attend UK group meetings.

Membership of the UK group entitles you to:

To join the UK group (and/or order literature, including back issues of ALIAS) please email the UK group. Before we can put you in touch with other group members you must register with (join) the group, in order to safeguard everyone against non-genuine enquirers.

Email Circles/Facebook Groups

Some of the support groups below have set up private email discussion circles or Facebook groups for affected adult women, and for parents. Once you have registered to join one of the support groups you can then ask about the discussion circles/groups. Unlike some online discussion circles/groups, ours are not 'open house' on the Internet available to any member of the general public who wants to sign up. All participants in our circles/groups are people who have provided their basic details (name, address, phone, diagnosis if known - all kept confidential) by registering with one of the support groups (and many have attended group meetings); so that we have confidence that participants are genuine.

A Note about Diagnoses

Although this web site and our literature provide medical information we cannot help people to diagnose themselves. That is the role of specialist clinicians. Most of the information pages of this site were written by a group member who has a higher degree in Human Physiology and has worked in medical research but who is not medically qualified. We do not have qualified doctors within our group (although we work closely with selected clinicians to help advance the clinical service they can offer through the usual medical channels).

National Contact Details

Patient/parent enquirers: We cannot deal with your enquiry unless you make it clear which country you are in.

Journalists, magazine editors, TV film makers: Please read our Media Guidelines and Caster Semenya before contacting the UK group.

Country or Geographical Area
(in order of date started)

Contact Details
(use symbols for 'AT' and 'DOT' in email addresses)

UK (and Eastern Europe and Asia)
[but see lower down for India]
(UK group started 1988 by mother of CAIS infant)

AISSG UK
PO Box address available on request
http://www.aissg.org
email: uk AT aissg DOT org

Please publish/pass on only our web address (not our email address). Thank you.

USA and South America
(Registered IRS [501(c)3 Organization] No. 37-1407648.
USA group started 1995 as AISSG-USA by CAIS 36 year-old after attending April 1995 UK meeting. Changed its name to AIS-DSD Support Group for Women and Families in mid-2011)

Información en Español

AIS-DSD Support Group
(was AISSG USA)
PO Box 2148
Duncan, OK 73534-2148
http://www.aisdsd.org
email: info AT aisdsd DOT org

Canada
(Charitable Business No. 88977 6142 RR0001.
East Coast Canadian group started 1996 by CAIS 43 year-old after attending Sept 1996 USA meeting.
West Coast group started in 2001.)

Information en Français

AISSG Canada

East
#206, 115 The Esplanade
Toronto, Ontario
M5E 1Y7
email: sallie AT ican DOT net (English)
email: orchideequebec AT yahoo DOT ca (French)

West
#17, 3031 Williams Road
Richmond, B.C.
V7E 1H9
email: lesnick AT shaw DOT ca

Australia
(Australian group started 1996 by Swyers 50 year-old after attending Sept 1996 UK meeting)

AISSG Australia
PO Box 3239
South Brisbane QLD 4101
Australia
http://www.vicnet.net.au/~aissg
email: aissgaustralia AT gmail DOT com

Germany
(German group started 1996 by PAIS 38 year-old after attending Sept 1995 and Sept 1996 UK meetings)
Informationen in Deutsch

Intersexualle Menschen/XY Frauen Deutschland
Postweg 11
21629 Neu Wulmstorf
http://www.intersexuelle-menschen.net
email: vorstand AT intersexuelle-menschen DOT net

Switzerland
(French-speaking support started 1998 by CAIS 44 year-old after attending March 1998 and Sept 1998 UK  meetings. German-speaking group started 2001 by mother of intersexed child after attending Sept 2000 UK meeting)
Information en Français
Informationen in Deutsch
Informazioni in Italiano

AISSG Switzerland

Français
4 Rue de Couchant
1248 Hermance, Geneva

Deutsch (parents)
Selbsthilfe Intersexualität
Postfach 4066
CH - 4002 Basel
http://www.si-global.ch
email: info AT si-global DOT ch

Deutsch (adults)
Intersex Schweiz
http://intersex.ch
email: kontakt AT intersex DOT ch

South Africa
(Started 1998 by mother of CAIS 3 year-old after attending Sept 1998 UK meeting)

AISSG South Africa
email: saais AT iafrica DOT com
tel: +27 21 828757230

Spain and Portugal
(Fiscal Identification (C.I.F.) G63220958.
Started 2000 by CAIS 27 year-old after attending Oct 1999 UK meeting)

Información en Español

GrApSIA Asociación Spain http://www.grapsia.org
tel: (+34) 654 987 482
email: grapsia AT gmail DOT com

Italy
(Started 2000 by CAIS 32 year-old after attending March 2000 UK meeting)
Informazioni in Italiano
Information en Français
Informationen in Deutsch

AISIA (Associazione Italiana
Sindrome Insensibilità Androgeni) Italia
http://www.aisia.org
email: info AT sindromedimorris DOT org (adulti)
email: genitori AT sindromedimorris DOT org (genitori)

France
(Started 2000 by CAIS 25 year-old after attending March 2000 and Sept 2000 UK meetings)
Information en Français

AISSG France
tel: (+33) 0/6 14 26 35 87
email: sia DOT gssia AT gmail DOT com

The Netherlands
(Started 2000 by 31 year-old after attending Sept 2000 UK meeting; together with a parent couple and child psychologist without AISSG connections)
Informatie in het Nederlands

AISNederland Holland
http://www.aisnederland.nl
email: reactie AT aisnederland DOT nl

Greece and Cyprus
(Started 2000 by PAIS 26 year-old after attending Sept 2000 UK meeting)

AISSG Greece
email: aishellas AT yahoo DOT gr

Norway
(Started 2000 by mother of CAIS 10 year-old after attending Sept 2000 UK meeting)

AISSG Norway
Boks 539
2301 Hamar, Norway
email: post AT nfga DOT net (dud)

Sweden
Information på Svenska

Intersexuella i Sverige
http://www.inis-org.se
email: kontakta AT inis-org DOT se

Finland
(Started 2002 by CAIS  22 year-old after being in touch with the UK group)

AISSG Finland
email: terhiviikki AT hotmail DOT com

Iceland
(Started 2002 by mother of CAIS 20 year-old after being an AISSG UK member since 1999)

AISSG Iceland
email: kretamaria AT hotmail DOT com

India
(Started 2002 by 26 year-old  and a mother of AIS 7 year-old after being in touch with the UK group)

AISSG India
email: neeti0 AT lycos DOT com (adults) (dud)
email: vidya_28 AT hotmail DOT com (parents)

New Zealand
(Started 2002 by father of AIS baby after being in touch with UK group. taken over by mother of PAIS child Nov 2003, then by AIS 39 yr-old Oct 2008)

AISSG New Zealand
email: ais_nz AT yahoo DOT co DOT nz (dud)

Israel
(Started 2003 by PAIS 30 year-old after being in touch with UK group)

AISSG Israel
email: israel.intersexsup AT gmail DOT com
phone: 972-4-833-1357 (voice mail)

Denmark
(Started 2004 by PAIS 39 year-old, then in 2014 another Danish woman set up this dedicated Danish organisation)

Dansk Interkøn Forening og Rådgivning
email: kontakt AT dixfor DOT org

Poland
(Started 2006 by PAIS 30 year-old after attending April 2006 UK meeting. A 17 year-old had email address on site for few years from 2002 then faded away.)
Informacje po Polsku

AISSG Poland
email: aissgpol MALPA yahoo KROPKA pl

Myanmar
(Started early 2007 by 27 year-old after being in touch with UK group)

AISSG Myanmar
email: aissgmy AT googlemail DOT com

East Africa
(Started Aug 2008 by 38 year-old with PAIS in Uganda after being in touch with UK group)

AISSG East Africa
http://www.sipd.webs.com
email: aissgeastafrica AT gmail DOT com

Estonia
(Started 2012 by AIS 30 year-old after being in touch with the UK group)
Eestikeelne Informatsioon

AISSG Estonia
email: laylasaida AT hotmail DOT com

Japan
(Started 2012 by uncle of AIS child after attending 2009 US meeting and Japanese woman who attended 2011 US meeting)

AIS-DSD Support Group Japan
http://aissgjp.org/
email: support AT aissgjp DOT org


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