How to Contact Us

[last updated 05 Aug 2008]

Please read this introduction before using the contact information lower down on this page.

Who Can We Help?

We are here to assist people who have good reason to believe they, or a family member has AIS or a closely related biological intersex condition. We welcome contributions to our Personal Stories page, even if you are not seeking information/support or joining the group.

We are a peer support organisation run by just a few volunteers in their spare time (and currrently with no funding other than modest annual registration fees and literature income). We regret we cannot supply information to people with other gender-related issues or to students doing school/college projects. Please do not email us any large files/attachments unless agreed upon beforehand.

Joining a Group

This website is just the start. Some national groups (generally those with sufficient resources to hold group meetings) operate an annual membership/registration scheme within their country, although some groups are too small to do this at present. Enquirers are welcome to register as members of the UK group and/or order literature from us, even if they are outside the UK. We have a number of overseas members, some of whom attend UK group meetings.

Membership of the UK group entitles you to:

free subscription to our online 'newsgroup' service...... to receive regular email updates on group activities, clinical advances, news and views, conferences/symposia, research studies, talks by members, forthcoming media coverage (newspapers, magazines, TV) etc.

invitation (via the newsgroup) to attend UK group meetings..... where you can hear about the latest medical thinking and research from our guest clinicians, and can meet other affected girls/women and families. Group meetings are the best way to exchange experiences and explore issues and to feel 'normal' (whatever that may be). See Group Meetings page for general information about meetings.

free access to the latest newsletter (A^LI^AS) as and when published. See Literature page for general information about our literature.

To join the UK group (and/or order literature, including back issues of A^LI^AS) please return the form/s contained in our Basic Info Document (please ask if you need a Word version). Before we can put you in touch with other group members you must register with (join) the group, in order to safeguard everyone against non-genuine enquirers.

Email Discussion Circles

Some of the support groups below have set up private email discussion circles for affected adult women, and for parents. Once you have registered to join one of the support groups you can then ask about the email circles. There is a North American email circle (run by the members of AISSG-USA and AISSG-Canada) and a UK/European email circle (run by members of the UK group). Unlike some online discussion circles/groups, ours are not 'open house' on the Internet available to any member of the general public who wants to sign up. All participants in our circles are people who have provided their basic details (name, address, phone, diagnosis if known - all kept confidential) by registering with one of the support groups (and many have attended group meetings); so that we have confidence that participants are genuine.

A Note about Diagnoses

Although this web site and our literature provide medical information we cannot help people to diagnose themselves. That is the role of specialist clinicians. Most of the information pages of this site were written by a group member who has a higher degree in Human Physiology and has worked in medical research but who is not medically qualified. We do not have qualified doctors within our group (although we work closely with selected clinicians to help advance the clinical service they can offer through the usual medical channels).

National Contact Details

Please note: We cannot deal with patient/parent enquiries unless you make it clear which country you are in. Journalists, magazine editors, TV film makers: please read our Media Guidelines (PDF) before contacting the UK group. (You need to have a PDF Reader on your PC in order to access PDF files - see About this Site page for info about this.)

Country or Geographical Area (in order of date started)	Contact Details (use symbols for 'AT' and 'DOT' in email addresses)
UK (and Eastern Europe and Asia) [but see lower down for India] (UK group started 1988 by mother of CAIS infant)	AISSG UK PO Box address available on request http://www.aissg.org email: uk AT aissg DOT org *Please publish only our web* address (not our email address). Thank you.** Basic Info Document (Please ask if you need Word version)
USA and South America (USA group started 1995 by CAIS 36 year-old after attending April 1995 UK meeting) Información en Español	AISSG USA PO Box 2148 Duncan, OK 73534-2148 http://www.aissgusa.org email: aissgusa AT hotmail DOT com
Canada (East Coast Canadian group started 1996 by CAIS 43 year-old after attending Sept 1996 USA meeting. West Coast group started in 2001.) Information en Français	AISSG Canada East #206, 115 The Esplanade Toronto, Ontario M5E 1Y7 email: sallie AT ican DOT net (English) email: orchideequebec AT yahoo DOT ca (French) West #17, 3031 Williams Road Richmond, B.C. V7E 1H9 email: lesnick AT shaw DOT ca
Australia (Australian group started 1996 by Swyers 50 year-old after attending Sept 1996 UK meeting)	AISSG Australia P.O. Box 1089, Altona Meadows Victoria, Australia 3028 Tel/Fax: +61 3 9315 8809 http://www.vicnet.net.au/~aissg email: aissg AT iprimus DOT com DOT au
Germany (German group started 1996 by PAIS 38 year-old after attending Sept 1995 and Sept 1996 UK meetings) Informationen in Deutsch	AIS-Kontaktgruppe/XY Frauen Deutschland KISS-Barmbek Stichwort AIS Fuhlsbütteler Str. 401 22309 Hamburg tel: (040) 63 11 11 0 fax: (040) 63 97 34 28 http://www.xy-frauen.de email: info AT xy-frauen DOT de
Switzerland (French-speaking support started 1998 by CAIS 44 year-old after attending March 1998 and Sept 1998 UK meetings. German-speaking group started 2001 by mother of intersexed child after attending Sept 2000 UK meeting) Information en Français Informationen in Deutsch Informazioni in Italiano	AISSG Switzerland Français 4 Rue de Couchant 1248 Hermance, Geneva Deutsch (parents) Selbsthilfegruppe für Intersexualität Postfach CH - 4002 Basel email: xy-frauen AT bluewin DOT ch Deutsch (adults) intersex.ch http://intersex.ch
South Africa (Started 1998 by mother of CAIS 3 year-old after attending Sept 1998 UK meeting)	AISSG South Africa PO Box 760, Constantia 7848, Cape Town email: saais AT iafrica DOT com tel: +27 21 828757230
Spain and Portugal (Started 2000 by CAIS 27 year-old after attending Oct 1999 UK meeting) Información en Español	GrApSIA Asociación Spain http://www.grapsia.org tel: (+34) 654 987 482 email: grapsia AT gmail DOT com
France (Started 2000 by CAIS 25 year-old after attending March 2000 and Sept 2000 UK meetings) Information en Français	AISSG France email: gssia AT wanadoo DOT fr
The Netherlands (Started 2000 by 31 year-old after attending Sept 2000 UK meeting; together with a parent couple and child psychologist without AISSG connections) Informatie in het Nederlands	AISNederland Holland http://www.aisnederland.nl email: reactie AT aisnederland DOT nl
Italy (Started 2000 by CAIS 32 year-old after attending Sept 2000 UK meeting) Informazioni in Italiano Information en Français Informationen in Deutsch	AISIA (Associazione Italiana Sindrome Insensibilità Androgeni) Italia http://www.sindromedimorris.org email: info AT sindromedimorris DOT org (adulti) email: genitori AT sindromedimorris DOT org (genitori)
Greece and Cyprus (Started 2000 by PAIS 26 year-old after attending Sept 2000 UK meeting)	AISSG Greece email (1): aisorchidees AT yahoo DOT de email (2): aishellas AT yahoo DOT gr
Norway (Started 2000 by mother of CAIS 10 year-old after attending Sept 2000 UK meeting)	AISSG Norway Boks 539 2301 Hamar, Norway email: post AT nfga DOT net
Sweden (Started 2001 by CAIS 33 year-old after attending March 2001 UK meeting) Information på Svenska	AISSG Sweden email: martin DOT ritzen AT kbh DOT ki DOT se
Finland (Started 2002 by CAIS 22 year-old after being in touch with the UK group)	AISSG Finland email: terhiviikki AT hotmail DOT com
Iceland (Started 2002 by mother of CAIS 20 year-old after being an AISSG UK member since 1999)	AISSG Iceland email: kretamaria AT hotmail DOT com
India (Started 2002 by 26 year-old and a mother of AIS 7 year-old after being in touch with the UK group)	AISSG India email: neeti0 AT lycos DOT com (adults) email: vidya_28 AT hotmail DOT com (parents)
New Zealand (Started 2002 by father of AIS baby after being in touch with UK group)	AISSG New Zealand email: aisnz AT paradise DOT net DOT nz
Israel (Started 2003 by PAIS 30 year-old after being in touch with UK group)	AISSG Israel email: israelorchid AT hotmail DOT com phone: 972-4-833-1357 (voice mail)
Denmark (Started 2004 by PAIS 39 year-old)	AISSG Denmark email: lailej AT yahoo DOT dk
Poland (Started 2006 by PAIS 30 year-old after attending April 2006 UK meeting) Informacje po Polsku	AISSG Poland email: aissgpl AT yahoo DOT pl
Burma (Started early 2007 by 27 year-old after being in touch with UK group)	Myanmar Intersex Support Group Burma email: maissg AT gmail DOT com
East Africa (Started Aug 2008 by __ year-old with PAIS in Uganda after being in touch with UK group)	AISSG East Africa email: aissgeastafrica AT gmail DOT com